Journal of Pain and Symptom Management
Volume 25, Issue 1 , Pages 19-28, January 2003

Physicians' Interactions with Health Care Teams and Systems in the Care of Dying Patients:

Perspectives of Dying Patients, Family Members, and Health Care Professionals

  • Jan D Carline, PhD

      Affiliations

    • Corresponding Author InformationAddress reprint requests to: Jan D. Carline, PhD, Department of Medical Education and Biomedical Informatics, University of Washington, Box 357240, Seattle, WA 98195-7240, USA
    • Department of Medical Education and Biomedical Informatics, Seattle, WA, USA
  • ,
  • J.Randall Curtis, MD, MPH

      Affiliations

    • Division of Pulmonary and Critical Care Medicine, Department of Medicine, Seattle, WA, USA
    • Department of Health Services, Seattle, WA, USA
  • ,
  • Marjorie D Wenrich, MPH

      Affiliations

    • School of Medicine, Seattle, WA, USA
  • ,
  • Sarah E Shannon, RN, PhD

      Affiliations

    • School of Nursing, University of Washington, Seattle, WA, USA
  • ,
  • Donna M Ambrozy, PhD

      Affiliations

    • Department of Medical Education and Biomedical Informatics, Seattle, WA, USA
  • ,
  • Paul G Ramsey, MD

      Affiliations

    • School of Medicine, Seattle, WA, USA

Accepted 25 February 2002.

Abstract 

This study investigated the specific physician skills required to interact with health care systems in order to provide high quality care at the end of life. We used focus groups of patients with terminal diseases, family members, nurses and social workers from hospice or acute care settings, and physicians. We performed content analysis based on grounded theory. Groups were interviewed. Two domains were found related to physician interactions with health care systems: 1) access and continuity, and 2) team communication and coordination. Components of these domains most frequently mentioned included taking as much time as needed with the patient, accessibility, and respect shown in working with health team members. This study highlights the need for both physicians and health care systems to improve accessibility for patients and families and increase coordination of efforts between health care team members when working with dying patients and their families.

Keywords:  End-of-life care, health care systems, qualitative research

 

PII: S0885-3924(02)00537-7

Journal of Pain and Symptom Management
Volume 25, Issue 1 , Pages 19-28, January 2003