Journal of Pain and Symptom Management
Volume 35, Issue 6 , Pages 623-631, June 2008

Emotional Disclosure Through Patient Narrative May Improve Pain and Well-Being: Results of a Randomized Controlled Trial in Patients with Cancer Pain

  • M. Soledad Cepeda, MD, PhD

      Affiliations

    • Department of Anesthesia, Tufts-New England Medical Center, Boston, Massachusetts
    • Corresponding Author InformationAddress correspondence to: M. Soledad Cepeda, MD, PhD, Department of Anesthesia, Tufts-New England Medical Center, 750 Washington Street, Box 298, Boston, MA 02111, USA.
  • ,
  • C. Richard Chapman, PhD

      Affiliations

    • Pain Research Center, University of Utah, Salt Lake City, Utah, USA
  • ,
  • Nelcy Miranda, RN

      Affiliations

    • Department of Anesthesia, San Ignacio Hospital, Bogota
  • ,
  • Ricardo Sanchez, MD, MSc

      Affiliations

    • National University School of Medicine, Bogota
  • ,
  • Carlos H. Rodriguez, MD

      Affiliations

    • Pain and Palliative Care Service, Colombian National Institute of Cancer, Bogota, Colombia
  • ,
  • Andres E. Restrepo, MD

      Affiliations

    • Department of Anesthesia, San Ignacio Hospital, Bogota
  • ,
  • Lina M. Ferrer, MD

      Affiliations

    • Department of Anesthesia, San Ignacio Hospital, Bogota
  • ,
  • Rene A. Linares, MD

      Affiliations

    • Pain and Palliative Care Service, Colombian National Institute of Cancer, Bogota, Colombia
  • ,
  • Daniel B. Carr, MD

      Affiliations

    • Department of Anesthesia, Tufts-New England Medical Center, Boston, Massachusetts

Accepted 4 August 2007. published online 25 March 2008.

Abstract 

Narrative medicine is based upon physicians’ awareness of patients’ narration of their suffering, their hopes, and how illness has affected them. It offers a model for improving health outcomes. To determine whether incorporating a narrative approach in patients with cancer decreases pain intensity and improves their global sense of well-being, we performed a randomized, single-blind controlled trial in adult patients with cancer and average pain intensity levels of at least 5/10. Two hundred thirty-four patients were randomized into three groups: (1) narrative (n=79), in which patients wrote a story about how cancer affected their lives for at least 20 minutes once a week for three weeks; (2) questionnaire (n=77), in which patients filled out the McGill Pain Questionnaire; and (3) control (n=78), in which patients came weekly to medical visits during which they received usual customary care. Patients rated their pain on a 0–10 scale and their well-being on a seven-point Likert scale weekly for eight weeks. Two raters independently evaluated the emotional content of the narratives. Pain intensity and sense of well-being were similar in all groups before and after treatment. Subgroup analyses showed that patients whose narratives had high emotional disclosure had significantly less pain and reported higher well-being scores than patients whose narratives were less emotional. Further study is needed to demonstrate whether the implementation of narrative medicine is associated with health benefits in this and other contexts.

Key Words: Narrative medicine, emotional disclosure, RCT, pain treatment, symptom control

 

 Support for this study was provided by the Saltonstall Fund for Pain Research and a small donation from Grunenthal.

PII: S0885-3924(08)00060-2

doi:10.1016/j.jpainsymman.2007.08.011

Journal of Pain and Symptom Management
Volume 35, Issue 6 , Pages 623-631, June 2008