Journal of Pain and Symptom Management
Volume 37, Issue 5 , Pages 788-796 , May 2009

Narrative Research Methods in Palliative Care Contexts: Two Case Studies

  • Carol Thomas, BA, PhD

      Affiliations

    • International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom
    • Corresponding Author InformationAddress correspondence to: Carol Thomas, BA, PhD, International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster LA1 4YT, United Kingdom.
  • ,
  • Joanne Reeve, MRCGP, PhD

      Affiliations

    • NIHR School for Primary Care Research, The University of Manchester, Manchester, United Kingdom
  • ,
  • Amanda Bingley, BA, PhD

      Affiliations

    • International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom
  • ,
  • Janice Brown, PhD

      Affiliations

    • School of Nursing & Midwifery, University of Southampton, Southampton, United Kingdom
  • ,
  • Sheila Payne, BA, PhD

      Affiliations

    • International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom
  • ,
  • Tom Lynch, BA, MA

      Affiliations

    • International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom

,Accepted 7 May 2008.

References 

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  2. Elliott J. Using narrative in social research. Qualitative and quantitative approaches. London: Sage; 2005;
  3. Greenhalgh T, Hurwitz B. Narrative based medicine: dialogue and discourse in clinical practice. London: BMJ Books; 1998;
  4. Thomas C, Morris SM, Gatrell AC. Place of death in the Morecambe Bay area: patterns and preferences for place of final care and death among terminally ill cancer patients and their careers. Project Report Lancaster University, UK: Institute for Health Research; 2003;
  5. Thomas C, Morris SM, Clark D. Place of death: preferences among cancer patients and their carers. Soc Sci Med. 2004;58:2431–2444
  6. Thomas C. The place of death of cancer patients: can qualitative data add to known factors?. Soc Sci Med. 2005;60:2597–2607
  7. Glaser B, Strauss A. The discovery of grounded theory. Chicago, IL: Aldine; 1967;
  8. Mishler EG. Research interviewing: context and narrative. Cambridge, MA: Harvard University Press; 1986;
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  10. Bell SE. Experiencing illness in/and narrative. In:  Bird CE,  Conrad P,  Fremont AM editor. Handbook of medical sociology. 5th ed.. Upper Saddle River, NJ: Prentice Hall; 2000;pp. 184–199
  11. Frank AW. The wounded storyteller. Chicago: University of Chicago Press; 1995;
  12. Hyden L-C. Illness and narrative. Sociol Health Illn. 1997;19(1):48–69
  13. In:  May T editors. Qualitative research in action. London: Sage; 2002;
  14. Silverman D. Interpreting qualitative data. 3rd ed.. London: Sage; 2006;
  15. Mishler EG. Storylines. Craft artists' narratives of identity. Cambridge, MA: Harvard University Press; 1999;
  16. Greenhalgh T, Collard A. Narrative based health care: sharing stories: a multiprofessional workbook. London: BMJ Books; 2003;
  17. Kleinman A. The illness narratives: suffering, healing and the human condition. New York: Basic Books; 1988;
  18. Bingley A, Thomas C, Brown J, Reeve J. Developing narrative research in supportive and palliative care: the Cancer Experiences Collaborative (CECo) focuses on illness narratives. Palliat Med. 2008;22:653–658
  19. In:  Bowling A,  Ebrahim S editor. Handbook of health research methods: investigation, measurement and analysis. Buckingham: Open University Press; 2005;
  20. Spencer L, Ritchie J, Lewis J, Dillon L. Quality in qualitative evaluation: a framework for assessing research evidence. London: Government Chief Social Researcher's Office, Cabinet Office; 2003;

 The U.K. Economic and Social Research Council (ESRC) is acknowledged for funding the re-analysis of the interview data using narrative analysis methods (Ref: ESRC RES-000-22-2031).

PII: S0885-3924(08)00458-2

doi: 10.1016/j.jpainsymman.2008.05.006

Journal of Pain and Symptom Management
Volume 37, Issue 5 , Pages 788-796 , May 2009