Volume 38, Issue 4 , Pages 561-567, October 2009
Bereaved Parents' Perceptions About When Their Child's Cancer-Related Death Would Occur
Abstract
Parents of terminally ill children with cancer frequently ask clinicians when their child will die. Such information helps parents prepare for the child's death. To identify how parents perceived when their child's cancer-related death would occur, we conducted a secondary analysis of telephone interviews with 49 bereaved parents 6–10 months after their child's death to extract their descriptions of this occurrence. The parents knew in advance that their child was going to die, but they described when their child's death would occur in three different ways: anticipated (parents observed changes that alerted them that death was imminent; n
=
22, 52.4%), surprising (parents were surprised that their child died on that particular day; n
=
13, 31.0%), and overdue (parents had been waiting for the end of their child's apparent suffering; n
=
7, 16.7%). These categories did not differ by patients' diagnosis, sex, or location of death but differed slightly by symptom patterns. Parents who reported the occurrence of their child's death as surprising reported fewer symptom changes on the last day of their child's life, compared with the last week of life, than did the parents in the other two categories. These findings indicate that parents of children with terminal cancer can perceive when their child's death would occur very differently: Some are surprised, whereas others feel they have waited too long for their child's release from suffering. Clinicians can use these descriptions and the associated symptom patterns to help families prepare for their child's last week and last day.
Key Words: Parental perceptions, end of life, timing of cancer-related death, symptoms, pediatric oncology
This research was supported by grants from the Oncology Nursing Foundation and the National Institutes of Health (Cancer Center Support Grant P30 CA 21765) and by the American Lebanese Syrian Associated Charities.
PII: S0885-3924(09)00633-2
doi:10.1016/j.jpainsymman.2009.01.005
© 2009 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
Volume 38, Issue 4 , Pages 561-567, October 2009
