Journal of Pain and Symptom Management
Volume 38, Issue 6 , Pages 807-815 , December 2009

Mental Health Outcomes of Family Members of Oregonians Who Request Physician Aid in Dying

  • Linda Ganzini, MD, MPH

      Affiliations

    • Portland Center for the Study of Chronic, Comorbid Mental and Physical Disorders, Health Services Research and Development, Research Service (R&D 66), Portland Veterans Affairs Medical Center, Portland, Oregon, USA
    • Department of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA
    • Corresponding Author InformationAddress correspondence to: Linda Ganzini, MD, MPH, Portland Center for the Study of Chronic, Comorbid Mental and Physical Disorders, Health Services Research and Development, Research Service (R&D 66), Portland Veterans Affairs Medical Center, P.O. Box 1034, Portland, OR 97239, USA.
    • ,
  • Elizabeth R. Goy, PhD

      Affiliations

    • Portland Center for the Study of Chronic, Comorbid Mental and Physical Disorders, Health Services Research and Development, Research Service (R&D 66), Portland Veterans Affairs Medical Center, Portland, Oregon, USA
    • Department of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA
    • ,
  • Steven K. Dobscha, MD

      Affiliations

    • Portland Center for the Study of Chronic, Comorbid Mental and Physical Disorders, Health Services Research and Development, Research Service (R&D 66), Portland Veterans Affairs Medical Center, Portland, Oregon, USA
    • Department of Psychiatry, Oregon Health & Science University, Portland, Oregon, USA
    • ,
  • Holly Prigerson, PhD

      Affiliations

    • Center for Psycho-Oncology and Palliative Care Research, Dana-Farber Cancer Institute, Boston, Massachusetts, USA
    • Department of Psychiatry, Brigham and Women's Hospital, Boston, Massachusetts, USA

,Accepted 22 April 2009.

References 

  1. Oregon Department of Human Services . Available from: www.oregon.gov/DHS/ph/pas/index.shtmlAccessed September 12, 2008
  2. Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA. Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. N Engl J Med. 1998;339:967–973
  3. Ganzini L, Nelson HD, Schmidt TA, et al. Physicians' experiences with the Oregon Death with Dignity Act. N Engl J Med. 2000;342:557–563
  4. Ganzini L, Harvath TA, Jackson A, et al. Experiences of Oregon nurses and social workers with hospice patients who requested assistance with suicide. N Engl J Med. 2002;347:582–588
  5. Ganzini L, Dobscha SK, Heintz RT, Press N. Oregon physicians' perceptions of patients who request assisted suicide and their families. J Palliat Med. 2003;6:381–390
  6. Carlson B, Simopolous N, Goy ER, Jackson A, Ganzini L. Oregon hospice chaplains' experiences with patients requesting physician-assisted suicide. J Palliat Med. 2005;8:1160–1166
  7. Ganzini L, Beer TM, Brouns M, Mori M, Hsieh YC. Interest in physician-assisted suicide among Oregon cancer patients. J Clin Ethics. 2006;17:27–38
  8. Ganzini L, Goy ER, Dobscha SK. Oregonians' reasons for requesting physician aid in dying. Arch Intern Med. 2009;169:489–492
  9. Ganzini L, Goy ER, Dobscha SK. Why Oregon patients request assisted death: family members' views. J Gen Intern Med. 2008;23:154–157
  10. Ganzini L. Oregon hospice nurses' and social workers' views and experiences with patients who request assisted suicide. Portland: Department of Public Health and Preventive Medicine, School of Medicine, Oregon Health & Science University; April 2003;
  11. Compassion & Choices. Available from www.compassionandchoices.org. Accessed December 27, 2007. Oregon Department of Human Services, 2007.
  12. Stroebe M, Schut H, Stroebe W. Health outcomes of bereavement. Lancet. 2007;370:1960–1973
  13. Prigerson HG, Vanderwerker LC, Maciejewski PK. Prolonged grief disorder: a case for inclusion in DSM-V. In:  Stroebe M,  Hansson R,  Schut H, Stroebe  editor. Handbook of bereavement research and practice: 21st century perspectives. Washington, DC: American Psychological Association Press; 2008;p. 165–186
  14. Cole MG, Dendukuri N. Risk factors for depression among elderly community subjects: a systematic review and meta-analysis. Am J Psychiatry. 2003;160:1147–1156
  15. Bascom PB, Tolle SW. Responding to requests for physician-assisted suicide: “these are uncharted waters for both of us”. JAMA. 2002;288:91–98
  16. Sveen CA, Walby FA. Suicide survivors' mental health and grief reactions: a systematic review of controlled studies. Suicide Life Threat Behav. 2008;38:13–29
  17. Ganzini L, Goy ER, Miller LL, et al. Nurses' experiences with hospice patients who refuse food and fluids to hasten death. N Engl J Med. 2003;349:359–365
  18. Cohen S, Hoberman HM. Positive events and social supports as buffers of life change stress. J Appl Soc Psychol. 1983;13:99–125
  19. Cohen S, Mermelstein R, Kamark T, Hoberman HM. Measuring the functional components of social support. In:  Sarason IG,  Sarason B editor. Social support: Theory, research and applications. The Hague, The Netherlands: Martinus Nijhoff; 2004;p. 73–94
  20. Prigerson HG, Jacobs SC. Diagnostic criteria for traumatic grief: a rationale, consensus criteria, and preliminary empirical test. Part II. Theory, methodology and ethical issues. In:  Stroebe MS,  Hansson RO,  Stroebe W,  Schut H editor. Handbook of bereavement research: Consequences, coping, and care. Washington, DC: American Psychological Association Press; 2001;p. 614–646
  21. Beck AT, Steer RA, Garbin MG. Psychometric properties of the beck depression inventory: twenty-five years of evaluation. Clin Psychol Rev. 1988;8:77–100
  22. Lezak M. Tests of personal adjustment. Neuropsychological assessment. 3rd ed. New York: Oxford University Press; 1995;776–777
  23. American Psychiatric Association. Diagnostic and statistical manual of mental disorders, 4th ed., text revision. Washington, DC: American Psychiatric Association; 2000;
  24. First MB, Spitzer RL, Gibbon M, Williams JBW. User's guide for the structured clinical interview for DSM-IV Axis I disorders: Clinician version. SCID-I. New York: Biometrics Research Department; 1997;
  25. Patrick DL, Curtis JR, Engelberg RA, Nielsen E, McCown E. Measuring and improving the quality of dying and death. Ann Intern Med. 2003;139:410–415
  26. Harvath TA, Miller LL, Goy E, et al. Voluntary refusal of food and fluids: attitudes of Oregon hospice nurses and social workers. Int J Palliat Nurs. 2004;10:236–241
  27. Starks H, Back AL, Pearlman RA, et al. Family member involvement in hastened death. Death Stud. 2007;31:105–130
  28. Maciejewski PK, Zhang B, Block SD, Prigerson HG. An empirical examination of the stage theory of grief. JAMA. 2007;297:716–723
  29. Prigerson HG, Maciejewski PK. Grief and acceptance as opposite sides of the same coin: setting a research agenda to study peaceful acceptance of loss. Br J Psychiatry. 2008;193:435–437
  30. Barry LC, Kasl SV, Prigerson HG. Psychiatric disorders among bereaved persons: the role of perceived circumstances of death and preparedness for death. Am J Geriatr Psychiatry. 2002;10:447–457
  31. Swarte NB, van der Lee ML, van der Bom JG, van den Bout J, Heintz APM. Effects of euthanasia on the bereaved family and friends: a cross sectional study. Br Med J (Clin Res Ed). 2003;327:189–193

 E. R. G. and S. K. D. are Department of Veterans Affairs Health Services Research and Development, Research Career Development awardees. This study was funded by the Greenwall Foundation and the Department of Veterans Affairs.

 The views expressed in this article are those of the authors and do not necessarily reflect the position or policy of the Department of Veterans Affairs or the United States Government.

PII: S0885-3924(09)00707-6

doi: 10.1016/j.jpainsymman.2009.04.026

Journal of Pain and Symptom Management
Volume 38, Issue 6 , Pages 807-815 , December 2009

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