« Previous
Next »
Journal of Pain and Symptom Management
Volume 39, Issue 1
, Pages 23-32
, January 2010
Late-Stage HIV/AIDS Patients' and Their Familial Caregivers' Agreement on the Palliative Care Outcome Scale
References
- . Use of family proxies in quality of life research for cancer patients at the end of life: a literature review. Cancer Invest. 2002;20:1086–1104
- . Measuring end-of-life care outcomes prospectively. J Palliat Med. 2005;8(S1):S30–S41
- . Patient preferences and discharge planning transitions. J Prof Nurs. 2003;19(3):204–210
- . Judging the quality of care at the end of life: can proxies provide reliable information?. Soc Sci Med. 2003;56(1):95–109
- . The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol. 1992;45(7):743–760
- . Methodological challenges for measuring quality of care at the end of life. J Pain Symptom Manage. 1999;17(2):114–119
- . Pain in community-dwelling persons with dementia: frequency, intensity, and congruence between patient and caregiver report. J Pain Symptom Manage. 2004;28(6):585–592
- . A randomized, controlled study of an Alzheimer's caregiver skills training program. Am J Alzheimers Dis Other Demen. 2005;20(4):204–210
- A prospective study of quality of life in adults with newly diagnosed high-grade gliomas: comparison of patient and caregiver ratings of quality of life. Am J Clin Oncol. 2008;31(2):163–168
- . Perceptions of symptom distress in lung cancer patients: I. Congruence between patients and primary family caregivers. J Pain Symptom Manage. 1997;14(3):136–146
- . Asking the right question of informal caregivers about patient symptom experiences: multiple proxy perspectives and reducing interrater gap. J Pain Symptom Manage. 2007;33(2):130–145
- . Promoting enhanced patient and family caregiver congruence on lung cancer symptom experiences. Oncol Nurs Forum. 2006;33(2):273–282
- . Beliefs about the controllability of pain: congruence between older adults with cancer and their family caregivers. J Fam Nurs. 2005;11(3):225–241
- . Patients with advanced cancer and family caregivers' knowledge of health and community services: a longitudinal study. Health Soc Care Community. 2004;12(6):488–503
- . Hospice patient and caregiver congruence in reporting patients' symptom intensity. Cancer Nurs. 2003;26(2):113–118
- . Family caregivers' assessment of symptoms in patients with advanced cancer: concordance with patients and factors affecting accuracy. J Pain Symptom Manage. 2008;35(1):70–82
- . Perceptual consistency of pain and quality of life between hospice cancer patients and family caregivers: a pilot study. Int J Clin Pract. 2007;61(10):1686–1691
- . Factors influencing agreement in symptom ratings by lung cancer patients and their significant others. J Pain Symptom Manage. 2007;33(2):146–155
- Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol. 1997;15:1206–1217
- . Who should measure quality of life?. Br Med J. 2001;322:1417–1420
- . Research design in end-of-life research. Gerontologist. 2002;42:86–98
- . Proxies and other external raters: methodological considerations. Health Serv Res. 2005;40:1676–1693
- . Pain and depression in caregivers affected their perception of pain in stroke patients. J Clin Epidemiol. 2007;60:963–970
- . Elder-proxy agreement concerning the functional status and medical history of the older person: the impact of caregiver burden and depressive symptomatology. J Am Geriatr Soc. 1998;46:1103–1111
- . Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity. Health Qual Life Outcomes. 2008;6:42;Available from http://www.hqlo.com/content/pdf/1477-7525-6-42.pdfAccessed April 23, 2009
- . Quality of life assessment in patients undergoing head and neck surgery as evaluated by lay caregivers. Laryngoscope. 1999;109(1):42–46
- . Palliative care for patients with human immunodeficiency virus/acquired immune deficiency syndrome. J Palliat Med. 2005;8:1248–1268
- Service needs of patients with advanced HIV disease: a comparison of client and staff reports at three palliative care projects. AIDS Patient Care STDS. 2004;18(3):145–158
- Mental health status of clients from three HIV/AIDS palliative care projects. Palliat Support Care. 2004;2:125–158
- . Development and validation of a core outcome measure for palliative care: The Palliative Care Outcome Scale. Qual Health Care. 1999;8:219–227
- . The measurement of observer agreement for categorical data. Biometrics. 1977;33:159–174
- . The kappa statistic in reliability studies: use, interpretation, and sample size requirements. Phys Ther. 2005;85(3):257–268
- . Measures of inter-observer agreement: calculation formulas and distribution effects. Behav Assess. 1981;3:37–57
- . The assessment of needs in psychiatric patients. Interrater-reliability of the Swedish version of the Camberwell Assessment of Needs instrument and results from a cross-sectional study. Acta Psychiatr Scand. 1995;92:285–293
- . Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients. J Clin Epidemiol. 1998;51(7):617–631
- . Existential plight of adult daughters following their mother's breast cancer diagnosis. Psychooncology. 2005;14:49–60
This research was supported by Grant No. RO1-NR008343 from the National Institute of Nursing Research (V. H. Raveis, Principal Investigator).
PII: S0885-3924(09)00708-8
doi: 10.1016/j.jpainsymman.2009.05.010
© 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
« Previous
Next »
Journal of Pain and Symptom Management
Volume 39, Issue 1
, Pages 23-32
, January 2010
