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Journal of Pain and Symptom Management
Volume 39, Issue 1
, Pages 9-22
, January 2010
The Quality of Dying and Death Questionnaire (QODD): Empirical Domains and Theoretical Perspectives
References
- Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000;284:2476–2482
- . Shared priorities for the end-of-life period. J Pain Symptom Manage. 2009;37:175–188
- . The promise of a good death. Lancet. 1998;351(Suppl 2):21–29
- . Measuring quality of life for patients with terminal illness: the Missoula-VITAS quality of life index. Palliat Med. 1998;12:231–244
- . Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163–168
- . A new model of advance care planning: observations from people with HIV. Arch Intern Med. 1999;159:86–92
- . Methodological challenges for measuring quality of care at the end of life. J Pain Symptom Manage. 1999;17:114–119
- . The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manage. 1999;17:93–108
- In search of a good death: observations of patients, families, and providers. Ann Intern Med. 2000;132:825–832
- . What terminally ill patients care about: toward a validated construct of patients' perspectives. J Palliat Med. 2000;3:419–431
- . Evaluating the quality of dying and death. J Pain Symptom Manage. 2001;22:717–726
- . Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage. 2001;22:752–758
- Initial assessment of a new instrument to measure quality of life at the end of life. J Palliat Med. 2002;5:829–841
- . What determines the quality of life of terminally ill cancer patients from their own perspective?. J Palliat Care. 2002;18:48–58
- . A good death: a qualitative study of patients with advanced AIDS. AIDS Care. 2002;14:587–598
- . Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002;54:433–443
- . Validation of a new measure of concept of a good death. J Palliat Med. 2003;6:575–584
- Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors. Aging Ment Health. 2004;8:83–91
- . Measuring quality of dying in end-stage renal disease. Semin Dial. 2004;17:376–379
- . The dying role. J Palliat Med. 2007;10:159–168
- . Processes of adjustment to end-of-life losses: a reintegration model. J Palliat Med. 2007;10:1190–1198
- Measuring the quality of dying in long-term care. J Am Geriatr Soc. 2007;55:1371–1879
- . Measuring end-of-life care outcomes prospectively. J Palliat Med. 2005;8(Suppl 1):S30–S41
- . Research design in end-of-life research: state of science. Gerontologist. 2002;42(Spec. No. 3):86–98
- . The presentation of self in everyday life. New York: Doubleday; 1959;
- . Role taking: process versus conformity. In: Rose AM editors. Human behavior and social processes: An interactionist approach. Boston, MA: Houghton Mifflin; 1962;p. 20–40
- . Awareness contexts and social interaction. In: Fulton R editors. Death and identity. Revised ed.. Bowie, MD: Charles Press Publishers; 1976;p. 144–158
- . Stability and change in self over the life course. In: Baltes PB, Featherman DL, Lerner RM editor. Life-span development and behavior. Vol. 8:Hillsdale, NJ: Erlbaum; 1988;p. 191–229
- . The reflected appraisal process in small-group interaction. Soc Psychol Q. 1993;56:87–99
- . Does the self conform to the views of others?. Soc Psychol Q. 1999;62:68–82
- . Symbolic interactionism: A social structural version. Caldwell, NJ: Blackburn Press; 2003;
- . Self and society: A symbolic interactionist social psychology. 9th ed.. Boston, MA: Allyn and Bacon; 2003;
- In: Burke PJ, Owens TJ, Serpe R, Thoits PA editor. Advances in identity theory and research. New York: Kluwer Academic/Plenum Publishers; 2003;
- . Feeling good, feeling well: identity, emotion, and health. In: Burke PJ, Owens TJ, Serpe RT, Thoits PA editor. Advances in identity theory and research. New York: Kluwer Academic/Plenum Publishers; 2003;p. 123–134
- . Identity change. Soc Psychol Q. 2006;69:81–96
- . Introducing science to the psychology of the soul: experimental existential psychology. Curr Dir Psychol Sci. 2006;15:212–216
- . The social reality of death: Death in contemporary America. Reading, MA: Addison-Wesley; 1980;
- . Awareness and modern dying. Mortality (Abingdon, England). 1996;1:255–265
- . The social construction of the “dying role” and the hospice drama. Omega (Westport). 1999–2000;40:493–512
- . The “moment of death.”. Omega (Westport). 2007;55:219–236
- A measure of the quality of dying and death: initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002;24:17–31
- . Correspondence between patients' preferences and surrogates' understandings for dying and death. J Pain Symptom Manage. 2005;30:498–509
- Might massage or guided meditation provide “means to a better end”? Primary outcomes from an efficacy trial with patients at the end of life. J Palliat Care. 2009;25:100–108
- Quality of Death and Dying Questionnaire (original interview instrument). Available from http://depts.washington.edu/eolcare/instruments/uwqodd-soadi.pdfAccessed April 7, 2009
- . Confirmatory factor analysis for applied research. New York: The Guilford Press; 2006;
- . Mplus user's guide. 4th ed.. Los Angeles: Muthén & Muthén; 1998–2006;
- . Evaluating cutoff criteria of model fit indices for latent variable models with binary and continuous outcomes. Los Angeles: UCLA; 2002;[dissertation]
- Dignity in the terminally ill: revisited. J Palliat Med. 2006;9:666–672
- . Psychological considerations, growth, and transcendence at the end of life: the art of the possible. JAMA. 2001;285:2898–2905
- . Bioethics for clinicians: quality end-of-life care. CMAJ. 1998;159:159–162
- . As individual as death itself: a focus group study of terminal care in nursing homes. J Palliat Med. 2002;5:117–125
- Preparing for the end of life: preferences of patients, families, physicians, and other care providers. J Pain Symptom Manage. 2001;22:727–737
- . Quality of life while dying: a qualitative study of terminally ill older men. J Am Geriatr Soc. 2003;51:1595–1601
- . Dying well: Peace and possibilities at the end of life. New York: Riverhead Books; 1997;
- . Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5:168–195
- . Evolution in measuring the quality of dying. J Palliat Med. 2002;5:407–414
- Are you at peace?” One item to probe spiritual concerns at the end of life. Ann Intern Med. 2006;166:101–105
- Burden to others and the terminally ill. J Pain Symptom Manage. 2007;34:463–471
- . Measurement of quality of care and quality of life at the end of life. Gerontologist. 2002;42(Spec. No. 3):71–80
- . Measuring end-of-life care outcomes retrospectively. J Palliat Med. 2005;8(Suppl 1):S42–S49
- . Are bereaved family members a valid proxy for a patient's assessment of dying?. Soc Sci Med. 1994;38:553–557
- . How reliable are relatives' retrospective reports of terminal illness? Patients' and relatives' accounts compared. Soc Sci Med. 1996;43:1229–1236
- . Deaths by place of death, age, race, and sex: United States, 2002. Available from http://www.cdc.gov/nchs/data/dvs/mortfinal2002_work309.pdfAccessed March 28, 2008
- . Educational attainment of people 18 years and over, by metropolitan and nonmetropolitan residence, age, sex, race and Hispanic origin: March 2002. Available from http://www.census.gov/population/socdemo/education/ppl-169/tab11.pdfAccessed March 28, 2008
- . The quality of dying and death. Arch Intern Med. 2008;168:912–918
The following organizations provided financial support for the studies included in this article: 1) The Robert Wood Johnson Foundation—Missoula study, 2) Agency for Healthcare Quality and Research grant #R03 HS09540—hospice study, 3) National Cancer Institute grant #5 R01 CA106204—clinical trial, and 4) Lotte & John Hecht Memorial Foundation—clinical trial.
PII: S0885-3924(09)00737-4
doi: 10.1016/j.jpainsymman.2009.05.012
© 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
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Journal of Pain and Symptom Management
Volume 39, Issue 1
, Pages 9-22
, January 2010
