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Volume 39, Issue 1, Pages 76-87 (January 2010)


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Physicians' Beliefs and Attitudes About End-of-Life Care: A Comparison of Selected Regions in Hungary and the United States

Agnes Csikos, MDa, John Mastrojohn III, RN, MSN, MBAbc, Teresa Albanese, PhDdeCorresponding Author Informationemail address, Jessica Richmond Moeller, MAh, Steven Radwany, MDfg, Csilla Busa, MAi

Accepted 17 June 2009. published online 05 November 2009.

Abstract 

Context

Unlike primary care physicians in the U.S., it is only recently that Hungarian primary care physicians have had the educational resources for providing end-of-life care and the availability of hospice services as part of the Hungarian health care system.

Objectives

The aim of this study was to assess, compare, and contrast beliefs and practices of end-of-life care held by primary care physicians practicing in selected regions of the United States and Hungary.

Methods

A 22-item questionnaire, written in English, translated to Hungarian, and pilot tested in both countries, was mailed to 339 Hungarian and 330 U.S. physicians, with response rates of 54% and 48%, respectively. Descriptive and bivariate analyses were conducted to compare the samples.

Results

Over half of U.S. physicians indicated they were quite knowledgeable about hospice care and rated currently available services for the terminally ill as exceptionally good, compared to less than 10% of Hungarian physicians. The physicians' differing beliefs that discussing a terminal prognosis fosters a sense of hopelessness is consistent with disclosure beliefs and practices. The majority of U.S. physicians believe it is the patients' right to know and always tell them when the diagnosis is terminal. Hungarian physicians (44%) believe that the patient's right to know is balanced by the physician's judgment of the patient's best interest, and an additional 40% disclose only if asked.

Conclusion

These results illustrate some of the important differences in physicians' beliefs about the care of terminally ill patients between the two countries and can be used to guide medical education and practice.

a Institute of Family Medicine, University of Pécs, Pécs, Hungary

b Quality and Palliative Care, Alexandria, Virginia, USA

c National Hospice & Palliative Care Organization and Foundation for Hospices in Sub-Saharan Africa, Alexandria, Virginia, USA

d Health Services Research and Education Institute, Summa Health System, Akron, Ohio, USA

e Department of Internal Medicine, Summa Health System, Akron, Ohio, USA

f Palliative Care and Hospice Services, Summa Health System, Akron, Ohio, USA

g Northeastern Ohio Universities College of Medicine, Akron, Ohio, USA

h Department of Counseling, The University of Akron, Akron, Ohio, USA

i FACT Institute, Pécs, Hungary

Corresponding Author InformationAddress correspondence to: Teresa Albanese, PhD, Department of Internal Medicine, Summa Health System, 55 Arch Street, Suite 1A, Akron, OH 44304, USA.

 The authors wish to acknowledge the financial support of the U.S. Fulbright Program for Mr. Mastrojohn's Fulbright Fellowship (Institute of International Education) and Dr. Csikos' Fulbright Scholarship (Council for International Exchange of Scholars). The authors also acknowledge the support of the Hungarian Fulbright Commission, Budapest, Hungary; University of Pécs, Department of Family Medicine, Pécs, Hungary; and Health Services Research and Education Institute of Summa Health System Foundation, Akron, Ohio, USA. Dr. Csikos's work was supported, in part, by the Open Society Institute of the Soros Foundation.

PII: S0885-3924(09)00789-1

doi:10.1016/j.jpainsymman.2009.05.019


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