Journal of Pain and Symptom Management
Volume 39, Issue 3 , Pages 579-590 , March 2010

Parent Pain Responses as Predictors of Daily Activities and Mood in Children with Juvenile Idiopathic Arthritis: The Utility of Electronic Diaries

  • Mark Connelly, PhD

      Affiliations

    • Children's Mercy Hospitals and Clinics, Kansas City, Missouri, USA
    • Corresponding Author InformationAddress correspondence to: Mark Connelly, PhD, Children's Mercy Hospitals and Clinics, 2401 Gillham Road, Kansas City, MO 64108, USA.
    • ,
  • Kelly K. Anthony, PhD

      Affiliations

    • Duke University Medical Center, Durham, North Carolina, USA
    • ,
  • Rebecca Sarniak, MA

      Affiliations

    • University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA
    • ,
  • Maggie H. Bromberg, MA

      Affiliations

    • Duke University Medical Center, Durham, North Carolina, USA
    • ,
  • Karen M. Gil, PhD

      Affiliations

    • University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA
    • ,
  • Laura E. Schanberg, MD

      Affiliations

    • Duke University Medical Center, Durham, North Carolina, USA

,Accepted 3 August 2009.

References 

  1. Schanberg L, Anthony K, Gil K, Maurin E. Daily pain and symptoms in children with polyarticular arthritis. Arthritis Rheum. 2003;48:1390–1397
  2. Gutiérrez-Suárez R, Pistorio A, Cespedes C, et al. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology. 2007;46:314–320
  3. Malleson P, Oen K, Cabral D, et al. Predictors of pain in children with established juvenile rheumatoid arthritis. Arthritis Rheum. 2004;51:222–227
  4. Rapoff M, Lindsley C. The pain puzzle: a visual and conceptual metaphor for understanding and treating pain in pediatric rheumatic disease. J Rheumatol. 2000;58:29–33
  5. Claar R, Simons L, Logan D. Parental response to children's pain: the moderating impact of children's emotional distress on symptoms and disability. Pain. 2008;138:172–179
  6. Peterson C, Palermo T. Parental reinforcement of recurrent pain: the moderating impact of child depression and anxiety on functional disability. J Pediatr Psychol. 2004;29:331–341
  7. Simons L, Claar R, Logan D. Chronic pain in adolescence: parental responses, adolescent coping, and their impact on adolescent's pain behaviors. J Pediatr Psychol. 2008;33:894–904
  8. Walker L, Claar R, Garber J. Social consequences of children's pain: when do they encourage symptom maintenance?. J Pediatr Psychol. 2002;27:689–698
  9. Walker L, Levy R, Whitehead W. Validation of a measure of protective parent responses to children's pain. Clin J Pain. 2006;22:712–716
  10. Wall B, Holden E, Gladstein J. Parent responses to pediatric headache. Headache. 1997;37:65–70
  11. Craig K. Modeling and social learning factors in chronic pain. In:  Bonica J editors. Advances in pain research. New York: Raven Press; 1978;p. 813–827
  12. Fordyce W. The cognitive/behavioral perspective on clinical pain. In:  Loeser J,  Egan K editor. Managing the chronic pain patient. New York: Raven Press; 1989;p. 51–64
  13. Anthony K, Gil K, Schanberg L. Brief report: parental perceptions of child vulnerability in children with chronic illness. J Pediatr Psychol. 2003;28:185–190
  14. Frank R, Hagglund K, Schopp L, et al. Disease and family contributors to adaptation in juvenile rheumatoid arthritis and juvenile diabetes. Arthritis Care Res. 1998;11:166–176
  15. Schanberg L, Anthony K, Gil K, et al. Parental pain history predicts child health status in children with chronic rheumatic disease. Pediatrics. 2001;108:e47
  16. Wagner J, Chaney J, Hommel K, et al. The influence of parental distress on child depressive symptoms in juvenile rheumatic disease: the moderating effect of illness intrusiveness. J Pediatr Psychol. 2003;28:453–462
  17. Power J, Dahlquist L, Thompson S, Warren R. Interactions between children with juvenile rheumatoid arthritis and their mothers. J Pediatr Psychol. 2003;28:213–221
  18. Broderick J, Schwartz J, Vikingstad G, et al. The accuracy of pain and fatigue items across different reporting periods. Pain. 2008;139:146–157
  19. Stone A, Broderick J, Shiffman S, Schwartz J. Understanding recall of weekly pain from a momentary assessment perspective: absolute agreement, between- and within-person consistency, and judged change in weekly pain. Pain. 2004;107:61–69
  20. Shiffman S. Real-time self-report of momentary states in the natural environment: computerized ecological momentary assessment. In:  Turkkan J,  Stone A editor. The science of self-report: implications for research and practice. Mahwah, NJ: Lawrence Erlbaum Associates; 2000;p. 277–296
  21. Duffy C, Colbert R, Laxer R, Schanberg L, Bowyer S. Nomenclature and classification in chronic childhood arthritis: time for a change?. Arthritis Rheum. 2005;52:382–385
  22. Palermo T, Valenzuela D, Stork P. A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability. Pain. 2004;107:213–219
  23. Stinson J, Stevens B, Feldman B, et al. Construct validity of a multidimensional electronic pain diary for adolescents with arthritis. Pain. 2008;163:281–292
  24. Laurent J, Catanzaro S, Rudolph K, et al. A measure of positive and negative affect for children: scale development and preliminary validation. Psychol Assess. 1999;11:326–338
  25. Hainsworth K, Davies W, Khan K, Weisman S. Development and preliminary validation of the child activity limitations questionnaire: flexible and efficient assessment of pain-related functional disability. J Pain. 2007;8:746–752
  26. Palermo T, Lewandowski A, Long A, Burant C. Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): the CALI-21. Pain. 2008;139:644–652
  27. Schanberg L, Gil K, Anthony K, Yow E, Rochon J. Pain, stiffness, and fatigue in juvenile polyarticular arthritis: contemporaneous stressful events and mood as predictors. Arthritis Rheum. 2005;48:1390–1397
  28. Watson D, Clark L, Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol. 1988;54:1063–1070
  29. Connelly M, Keefe F, Affleck G, et al. Effects of day-to-day affect regulation on the pain experience of patients with rheumatoid arthritis. Pain. 2007;131:162–170
  30. Van Slyke D, Walker L. Mothers' responses to children's pain. Clin J Pain. 2006;22:387–391
  31. Giannini E, Brewer E. Standard methodology for segment I, II, and II Pediatric Rheumatology Collaborative Study Group studies. II. Analysis and presentation of data. J Rheumatol. 1982;9:114–122
  32. Affleck G, Zautra A, Tennen H, Armeli S. Multilevel daily process designs for consulting and clinical psychology: a preface for the perplexed. J Consult Clin Psychol. 1999;67:746–754
  33. Nezlek J. Multilevel random coefficient analyses of event- and interval-contingent data in social and personality psychology research. Pers Soc Psychol Bull. 2001;27:771–785
  34. Raudenbush S, Bryk AS. Hierarchical linear models, applications and data analysis methods. 2nd ed.. Thousand Oaks, CA: Sage Publications; 2002;
  35. Snijders TAB. Fixed and random effects. In:  Everitt BS,  Howell DC editor. Encyclopedia of statistics in behavioral science. Vol. 2:Chichester, UK: Wiley; 2005;p. 664–665
  36. Raudenbush S, Bryk A, Cheong Y, Congdon R, du Toit M. HLM 6: hierarchical linear and nonlinear modeling. Lincolnwood, IL: Scientific Software International Inc.; 2004;
  37. Piasecki TM, Hufford MR, Solhan M, Trull TJ. Assessing clients in their natural environments with electronic diaries: rationale, benefits, limitations, and barriers. Psychol Assess. 2007;19:25–43

PII: S0885-3924(10)00090-4

doi: 10.1016/j.jpainsymman.2009.07.013

Journal of Pain and Symptom Management
Volume 39, Issue 3 , Pages 579-590 , March 2010

Article Tools