Journal of Pain and Symptom Management
Volume 39, Issue 3 , Pages 555-563 , March 2010

The Experience of Breathlessness: The Social Course of Chronic Obstructive Pulmonary Disease

  • Marjolein Gysels, BA, MA, PhD

      Affiliations

    • Palliative Care Policy & Rehabilitation, School of Medicine, King's College London, London, United Kingdom
    • Barcelona Centre for International Health Research, Hospital Clinic–University of Barcelona, Barcelona, Spain
    • Corresponding Author InformationAddress correspondence to: Marjolein Gysels, BA, MA, PhD, Barcelona Centre for International Health Research, Hospital Clinic–University of Barcelona, Rosselló 132 sobreático, 08036 Barcelona, Spain.
  • ,
  • Irene J. Higginson, BMedSci, BMBS, FFPHM, PhD, FRCP

      Affiliations

    • Palliative Care Policy & Rehabilitation, School of Medicine, King's College London, London, United Kingdom

,Accepted 29 August 2009.

References 

  1. American Thoracic Society. Dyspnea. Mechanisms, assessment and management: a consensus statement. Am J Respir Crit Care Med. 1999;159:321–340
  2. Higginson I, McCarthy M. Measuring symptoms in terminal cancer: are pain and dyspnoea controlled?. J R Soc Med. 1989;82:264–267
  3. Claessens MT, Lynn J, Zhong Z, et al. Dying with lung cancer or chronic obstructive lung disease: insights from SUPPORT. J Am Geriatr Soc. 2000;48(Suppl 5):S146–S153
  4. Elkington H, White P, Addington-Hall JM, et al. The last year of life of COPD: a qualitative study of symptoms and services. Respir Med. 2004;98:439–445
  5. Oliver SM. Living with failing lungs: the doctor-patient relationship. Fam Pract. 2001;18:430–439
  6. Booth S, Silvester S, Todd C. Breathlessness in cancer and chronic obstructive pulmonary disease: using a qualitative approach to describe the experience of patients and carers. Palliat Support Care. 2003;1:337–344
  7. Edmonds P, Karlsen S, Khan S, Addington-Hall JM. A comparison of the palliative care needs of patients dying from chronic respiratory disease and lung cancer. Palliat Med. 2001;15:287–295
  8. Department of Health. Our health, our care, our say. London, England: The Stationery Office; 2006;
  9. Pauwels RA, Buist AS, Calverley CR, Hurd SS GOLD Scientific Committee. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. NHLBI/WHO Workshop Summary. Am J Respir Crit Care Med. 2001;163:1256–1276
  10. National Institute for Clinical Excellence. Chronic obstructive pulmonary disease: the management of adults with chronic obstructive pulmonary disease in primary and secondary care. London, England: National Institute for Clinical Excellence; 2003;
  11. Gysels M, Higginson IJ. Improving supportive and palliative care for adults with cancer. Research evidence manual. London, England: National Institute for Clinical Excellence; 2004;
  12. Curtis JR, Wenrich MD, Carline JD, et al. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002;122:356–362
  13. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with severe COPD. Eur Respir J. 2004;24:200–205
  14. Lieblich A, Tuval-Mashiach R, Ziber B. Narrative research. Reading, analysis and interpretation. Thousand Oaks, CA: Sage Publications; 1998;
  15. Chrisman N. The health seeking process: an approach to the natural history of an illness. Cult Med Psychiatry. 1977;1:351–377
  16. Strauss A. Social organisation of medical work. Chicago, IL: University of Chicago Press; 1985;
  17. Elkington H, White P, Higgs R, Pettinari CJ. GPs' views of discussions of prognosis in severe COPD. Fam Pract. 2001;18:440–444
  18. Fallowfield L. Giving sad and bad news. Lancet. 1993;341(476):478
  19. Ptacek JT, Eberhardt TL. Breaking bad news. A review of the literature. JAMA. 1996;276:496–502

 This research was made possible through funding from Cicely Saunders International.

 The authors declare no conflicts of interest.

PII: S0885-3924(10)00098-9

doi: 10.1016/j.jpainsymman.2009.08.009

Journal of Pain and Symptom Management
Volume 39, Issue 3 , Pages 555-563 , March 2010