Journal of Pain and Symptom Management
Volume 40, Issue 6 , Pages 838-843 , December 2010

Existential and Supportive Care Needs Among Patients with Chronic Kidney Disease

  • Sara N. Davison, MD, MHSc(Bioethics), FRCP(C)

      Affiliations

    • Division of Nephrology & Immunology, University of Alberta, Edmonton, Alberta, Canada
    • Corresponding Author InformationAddress correspondence to: Sara N. Davison, MD, MHSc(Bioethics), FRCP(C), 11-107 Clinical Sciences Building, University of Alberta, Edmonton, Alberta T6G 2G3, Canada.
  • ,
  • Gian S. Jhangri, MSc

      Affiliations

    • Department of Public Health Sciences, University of Alberta, Edmonton, Alberta, Canada

,Accepted 17 March 2010.

References 

  1. Chater S, Davison SN, Germain M, Cohen L. Withdrawal from dialysis: the palliative care perspective. Clinical Nephrology. Nov 2006;166(S):364–372
  2. Cohen LM, Germain MJ, Poppel DM, Woods A, Kjellstrand CM. Dying well after discontinuing the life support treatment of dialysis. Arch Intern Med. 2000;160:2513–2518
  3. Cohen LM, Germain M, Poppel DM, Woods A, Kjellstrand CM. Dialysis discontinuation and palliative care. Am J Kidney Dis. 2000;36:140–144
  4. Davison SN. Pain in hemodialysis patients: prevalence, cause, severity, and management. Am J Kidney Dis. 2003;42:1239–1247
  5. Grant E, Murray SA, Kendall M, et al. Spiritual issues and needs: perspectives from patients with advanced cancer and nonmalignant disease. A qualitative study. Palliat Support Care. 2004;2:371–378
  6. Puchalski CM, Romer A. Taking a spiritual history allows clinicians to understand patients more fully. J Palliat Med. 2000;3:129–137
  7. Breitbart W. Spirituality and meaning in supportive care: spirituality- and meaning-centered group psychotherapy interventions in advanced cancer. Support Care Cancer. 2001;10:272–280
  8. Koenig HG, McCullough ME, Larson DE. Handbook of religion and health. Oxford, UK: Oxford University Press; 2001;
  9. King M, Speck P, Thomas A. The royal free interview for spiritual and religious beliefs: development and validation of a self-report version. Psychol Med. 2001;31:1015–1023
  10. McEwen BS. Protective and damaging effects of stress mediators. N Engl J Med. 1998;338:171–179
  11. Steinhauser KE, Voils CI, Clipp EC, et al. “Are you at peace?:” one item to probe spiritual concerns at the end of life. Arch Intern Med. 2006;166:101–105
  12. Tanyi RA, Werner J, Gentry R, Sperstad R. Perceptions of incorporating spirituality into their care: a phenomenological study of female patients on hemodialysis. Nephrol Nurs J. 2006;33:532–538
  13. Kimmel PL, Emont SL, Newmann JM, Danko H, Moss AH. ESRD patient quality of life: symptoms, spiritual beliefs, psychosocial factors, and ethnicity. Am J Kidney Dis. 2003;42:713–721
  14. O’Brien ME. Religious faith and adjustment to long-term hemodialysis. J Relig Health. 1982;21:68–80
  15. Patel SS, Shah VS, Peterson RA, Kimmel PL. Psychosocial variables, quality of life, and religious beliefs in ESRD patients treated with hemodialysis. Am J Kidney Dis. 2002;40:1013–1022
  16. Moadel A, Morgan C, Dutcher J. Psychosocial needs assessment among an underserved, ethnically diverse cancer patient population. Cancer. 2007;109(2 Suppl):446–454
  17. Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987;40:373–383
  18. Van Manen JG, Korevaar JC, Dekker FW, et al. Adjustment for comorbidity in studies on health status in ESRD patients: which comorbidity index to use?. J Am Soc Nephrol. 2003;14:478–485
  19. Beddhu S, Bruns FJ, Saul M, Seddon P, Zeidel ML. A simple comorbidity scale predicts clinical outcomes and costs in dialysis patients. Am J Med. 2000;108:609–613
  20. King DE, Bushwick B. Beliefs and attitudes of hospital inpatients about faith healing and prayer. J Fam Pract. 1994;39:349–352
  21. Anderson JM, Anderson L, Felsenthal G. Pastoral needs and support within an inpatient rehabilitation unit. Arch Phys Med Rehabil. 1993;74:574–578
  22. Ehman JW, Ott BB, Short TH, Ciampa RC, Hansen-Flaschen J. Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill?. Arch Intern Med. 1999;159:1803–1806
  23. McCauley J, Jenckes MW, Tarpley MJ, et al. Spiritual beliefs and barriers among managed care practitioners. J Relig Health. 2005;44:137–146
  24. Koenig HG. Religious attitudes and practices of hospitalized medically ill older adults. Int J Geriatr Psychiatry. 1998;13:213–224
  25. Davison SN. End-of-life care preferences and needs: perceptions of patients with chronic kidney disease. Clin J Am Soc Nephrol. 2010;5:195–204
  26. Cohen SR, Mount BM, Tomas JJ, Mount LF. Existential well-being is an important determinant of quality of life. Evidence from the McGill Quality of Life Questionnaire. Cancer. 1996;77:576–586
  27. Rousseau P. Spirituality and the dying patient. J Clin Oncol. 2000;18:2000–2002
  28. Storey C. UNIPAC 2: Alleviating psychosocial and spiritual pain in patients with life-limiting illness. Glenview, IL: American Academy of Hospice and Palliative Medicine; 1997;
  29. Davies E, Higginson IJ. The solid facts: Palliative care. Copenhagen, Denmark: World Health Organization Regional Office for Europe; 2004;
  30. JCAHO . Spiritual assessment. Oakbrook Terrace, IL: Joint Commission on Accreditation of Healthcare Organizations; 2004;
  31. Hermann CP. The degree to which spiritual needs of patients near the end of life are met. Oncol Nurs Forum. 2007;34:70–78
  32. Koenig HG, Idler EL, Kasl S, et al. Religion, spirituality, and medicine: a rebuttal to skeptics. Int J Psychiatry Med. 1999;29:123–131
  33. Levin JS. How religion influences morbidity and health: reflections on natural history, salutogenesis and host resistance. Soc Sci Med. 1996;43:849–864
  34. Association of American Medical Colleges . Learning objectives for medical student education: Guidelines for medical schools. Washington, DC: Association of American Medical Colleges; 1998;
  35. Lo B, Ruston D, Kates LW, et al. Discussing religious and spiritual issues at the end of life: a practical guide for physicians. JAMA. 2002;287:749–754
  36. Cohen CB, Wheeler SE, Scott DA. Walking a fine line. Physician inquiries into patients’ religious and spiritual beliefs. Hastings Cent Rep. 2001;31:29–39
  37. Puchalski C, Ferrell B, Virani R, et al. Improving the quality of spiritual care as a dimension palliative care: the report of the consensus conference. J Palliat Med Oct. 2009;12:885–904
  38. Puchalski CM, Larson DB. Developing curricula in spirituality and medicine. Acad Med. 1998;73:970–974
  39. Moadel A, Morgan C, Fatone A, et al. Seeking meaning and hope: self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Psychooncology. 1999;8:378–385

PII: S0885-3924(10)00496-3

doi: 10.1016/j.jpainsymman.2010.03.015

Journal of Pain and Symptom Management
Volume 40, Issue 6 , Pages 838-843 , December 2010