Journal of Pain and Symptom Management
Volume 41, Issue 1 , Pages 57-67 , January 2011

A Measure of Palliative Care in Nursing Homes

  • Sarah Thompson, PhD, RN, FAAN

      Affiliations

    • University of Nebraska Medical Center College of Nursing, Omaha, Nebraska, USA
    • Corresponding Author InformationAddress correspondence to: Sarah Thompson, PhD, RN, FAAN, University of Nebraska Medical Center College of Nursing, 985330 Nebraska Medical Center, Omaha, NE 68198-5330, USA.
    • ,
  • Marjorie Bott, PhD, RN

      Affiliations

    • University of Kansas School of Nursing, Kansas City, Kansas, USA
    • ,
  • Diane Boyle, PhD, RN

      Affiliations

    • University of Kansas School of Nursing, Kansas City, Kansas, USA
    • ,
  • Byron Gajewski, PhD

      Affiliations

    • University of Kansas School of Nursing, Kansas City, Kansas, USA
    • School of Medicine, Kansas City, Kansas, USA
    • ,
  • Virginia P. Tilden, DNSc, RN, FAAN

      Affiliations

    • University of Nebraska Medical Center College of Nursing, Omaha, Nebraska, USA

,Accepted 31 March 2010.

References 

  1. Munn JC, Zimmerman S, Hanson LC, et al. Measuring the quality of dying in long-term care. J Am Geriatr Soc. 2007;55:1371–1379
  2. Teno JM. Brown Atlas of dying. Available from http://www.chcr.brown.edu/dying/brownatlas.htmAccessed October 11, 2008
  3. Brock DB, Foley DJ. Demography and epidemiology of dying in the U.S. with emphasis on deaths of older persons. Hosp J. 1998;13:49–60
  4. Forbes S. This is Heaven’s waiting room: end of life in one nursing home. J Gerontol Nurs. 2001;27:37–45
  5. Forbes-Thompson S, Gessert CE. End of life in nursing homes: connections between structure, process, and outcomes. J Palliat Med. 2005;8:545–555
  6. Kayser-Jones J. The experience of dying: an ethnographic nursing home study. Gerontologist. 2002;42(Spec No 3):11–19
  7. Kayser-Jones J, Schell E, Lyons W, et al. Factors that influence end-of-life care in nursing homes: the physical environment, inadequate staffing, and lack of supervision. Gerontologist. 2003;43(Spec No 2):76–84
  8. Hanson LC, Eckert JK, Dobbs D, et al. Symptom experience of dying long-term care residents. J Am Geriatr Soc. 2008;56:91–98
  9. Hodgson NA, Lehning AJ. Palliative care in nursing homes: a comparison of high- and low-level providers. Int J Palliat Nurs. 2008;14:38–44
  10. Johnson VM, Teno JM, Bourbonniere M, Mor V. Palliative care needs of cancer patients in U.S. nursing homes. J Palliat Med. 2005;8:273–279
  11. Oliver DP, Porock D, Zweig S. End-of-life care in U.S. nursing homes: a review of the evidence. J Am Med Dir Assoc. 2004;5:147–155
  12. In:  Wunderlich GS,  Kohler PO editor. Improving the quality of long-term care. Washington, DC: National Academies Press; 2001;
  13. World Health Organization . WHO definition of palliative care. Available from http://www.who.int/cancer/palliative/definition/en/Accessed January 16, 2009
  14. National Consensus Project for Quality Palliative Care (2009) . Clinical practice guidelines for quality palliative care, 2nd ed. http://www.nationalconsensusproject.org
  15. Thompson S, Church L. The structure and process of advanced chronic illness and palliative care in nursing homes. In:  Bern-Klug M editors. Transforming palliative care in nursing homes: The social work role. New York: Columbia University Press; 2010;p. 31–58
  16. Forbes-Thompson S, Gessert CE. Nursing homes and suffering: part of the problem or part of the solution?. J Appl Gerontol. 2006;25:234–251
  17. Forbes-Thompson S, Gajewski B, Scott-Cawiezell J, Dunton N. An exploration of nursing home organizational processes. West J Nurs Res. 2006;28:935–954
  18. Hanson LC, Ersek M. Meeting palliative care needs in post-acute care settings: “to help them live until they die”. JAMA. 2006;295:681–686
  19. Levy C, Morris M, Kramer A. Improving end-of-life outcomes in nursing homes by targeting residents at high-risk of mortality for palliative care: program description and evaluation. J Palliat Med. 2008;11:217–225
  20. Strumpf NE, Tuch H, Stillman D, Parrish P, Morrison N. Implementing palliative care in the nursing home. Ann Longterm Care. 2004;12:35–41
  21. Stillman D, Strumpf N, Capezuti E, Tuch H. Staff perceptions concerning barriers and facilitators to end-of-life care in the nursing home. Geriatr Nurs. 2005;26:259–264
  22. Stevenson DG, Bramson JS. Hospice care in the nursing home setting: a review of the literature. J Pain Symptom Manage. 2009;38:440–451
  23. Forbes S, Bern-Klug M, Gessert C. End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh. 2000;32:251–258
  24. Bern-Klug M, Gessert C, Forbes S. The need to revise assumptions about the end of life: implications for social work practice. Health Soc Work. 2001;26:38–48
  25. Forbes-Thompson S, Leiker T, Bleich MR. High-performing and low-performing nursing homes: a view from complexity science. Health Care Manage Rev. 2007;32:341–351
  26. Teno JM, Clarridge B, Casey V, et al. Validation of Toolkit After-Death Bereaved Family Member Interview. J Pain Symptom Manage. 2001;22:752–758http://www.chcr.brown.edu/pcoc/toolkit.htm
  27. Kiely DK, Volicer L, Teno J, et al. The validity and reliability of scales for the evaluation of end-of-life care in advanced dementia. Alzheimer Dis Assoc Disord. 2006;20:176–181
  28. Thompson S, Parker-Oliver D. A new model for long-term care: balancing palliative and restorative care delivery. J Hous Elderly. 2008;22:1–26
  29. Irwin DE, Varni JW, Yeatts K, DeWalt DA. Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study. Health Qual Life Outcomes. 2009;7:3
  30. Woolley ME, Bowen GL, Bowen NK. Cognitive pretesting and the developmental validity of child self-report instruments: theory and applications. Res Soc Work Pract. 2004;14:191–200
  31. Forbes-Thompson SA. The impact of quality end-of-life care in nursing homes. 2006; 5RO1NR009547-04 National Institute of Nursing Research 2006–2010.
  32. Shortell SM, Rousseau DM, Gillies RR, Devers KJ, Simons TL. Organizational assessment in intensive care units (ICUs): construct development, reliability, and validity of the ICU nurse-physician questionnaire. Med Care. 1991;29:709–726
  33. Shortell SM, Zimmerman JE, Rousseau DM, et al. The performance of intensive care units: does good management make a difference?. Med Care. 1994;32:508–525
  34. Scott J, Vojir C, Jones K, Moore L. Assessing nursing homes’ capacity to create and sustain improvement. J Nurs Care Qual. 2005;20:36–42
  35. Scott-Cawiezell J, Schenkman M, Moore L, et al. Exploring nursing home staff’s perceptions of communication and leadership to facilitate quality improvement. J Nurs Care Qual. 2004;19:242–252
  36. Gajewski BJ, Boyle DK, Thompson S. How a Bayesian might estimate the distribution of Cronbach’s alpha form ordinal-dynamic scaled data: a case study measuring nursing home residents quality of life. Methodology (Gott). 2010;6:71–82
  37. Nunnally JC. Psychometric theory. New York: McGraw-Hill; 1978;
  38. Brown TA. Confirmatory factor analysis for applied research. New York: The Guilford Press; 2006;
  39. Kline RB. Principles and practice of structural equation modeling. New York: The Guilford Press; 1998;
  40. Miller SC, Han B. End-of-life care in U.S. nursing homes: nursing homes with special programs and trained staff for hospice or palliative/end-of-life care. J Palliat Med. 2008;11:866–877

PII: S0885-3924(10)00501-4

doi: 10.1016/j.jpainsymman.2010.03.016

Journal of Pain and Symptom Management
Volume 41, Issue 1 , Pages 57-67 , January 2011

Article Tools

* Image Usage & Resolution