Advertisement
Original Article| Volume 60, ISSUE 3, P503-511, September 2020

Associations Between the Intention to Use Early Palliative Care, Sources of Information, and Attitudes Toward a Good Death in Korean Adults

      Abstract

      Context

      Providing hospice and palliative care (HPC) early in the course of care for patients with life-threatening illness is important for improving patient quality of life. However, little literature exists for factors affecting to the intention to use early palliative care (EPC) of general population.

      Objectives

      This study aimed to identify the sources of information about HPC, investigate whether they affect intention to use HPC and EPC, and examine the relationship between the components of a good death and the intention to use HPC and EPC.

      Methods

      A stratified nationwide cross-sectional survey including 1500 participants, 20–74 years old, was conducted to investigate their intentions to use HPC and EPC, available information sources, and perceived components of a good death.

      Results

      The main sources of information about HPC were television and radio. Information acquired from health professionals was positively associated with the intention to use EPC. Although regarding a good relationship with family as a component of a good death was related to low intention to use EPC, being able to trust medical staff, being involved in decisions about care, and being respected as an individual were associated with high intention to use EPC.

      Conclusion

      Information from health care providers and public awareness through education and publicity efforts are necessary to inform the public about the benefits of EPC. Furthermore, it is essential that medical staff cultivate the skills necessary to secure public trust and provide care that respects patients until the end of their lives.

      Key Words

      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Journal of Pain and Symptom Management
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • National Institute Aging
        What are palliative care and hospice care?.
        (Available from)
        • World Health Organization
        Planning and implementing palliative care services: A guide for programme managers.
        WHO Press, Geneva2016
        • Smallwood N.
        • Moran T.
        • Thompson M.
        • et al.
        Integrated respiratory and palliative care leads to high levels of satisfaction: a survey of patients and carers.
        BMC Palliat Care. 2019; 18: 7
        • Gomez-Batiste X.
        • Porta-Sales J.
        • Espinosa-Rojas J.
        • et al.
        Effectiveness of palliative care services in symptom control of patients with advanced terminal cancer: a Spanish, multicenter, prospective, quasi-experimental, pre-post study.
        J Pain Symptom Manage. 2010; 40: 652-660
        • Kassianos A.P.
        • Ioannou M.
        • Koutsantoni M.
        • Charalambous H.
        The impact of specialized palliative care on cancer patients' health-related quality of life: a systematic review and meta-analysis.
        Support Care Cancer. 2018; 26: 61-79
        • Baek Y.J.
        • Shin D.W.
        • Choi J.Y.
        • et al.
        Late referral to palliative care services in Korea.
        J Pain Symptom Manage. 2011; 41: 692-699
        • Ferrell B.R.
        • Temel J.S.
        • Temin S.
        • et al.
        Integration of palliative care into standard oncology care: American Society of Clinical Oncology clinical practice guideline update.
        J Clin Oncol. 2017; 35: 96-112
        • Chin J.J.
        • Ho C.W.
        • Arima H.
        • et al.
        Integration of palliative and supportive cancer care in Asia.
        Lancet Oncol. 2012; 13: 445-446
        • An A.R.
        • Lee J.K.
        • Yun Y.H.
        • Heo D.S.
        Terminal cancer patients' and their primary caregivers' attitudes toward hospice/palliative care and their effects on actual utilization: a prospective cohort study.
        Palliat Med. 2014; 28: 976-985
        • Yoo S.H.
        • Kim M.
        • Yun Y.H.
        • et al.
        Attitudes toward early palliative care in cancer patients and caregivers: a Korean nationwide survey.
        Cancer Med. 2018; 7: 1784-1793
        • Shim M.
        • Kelly B.
        • Hornik R.
        Cancer information scanning and seeking behavior is associated with knowledge, lifestyle choices, and screening.
        J Health Commun. 2006; 11: 157-172
        • Hornik R.
        • Parvanta S.
        • Mello S.
        • et al.
        Effects of scanning (routine health information exposure) on cancer screening and prevention behaviors in the general population.
        J Health Commun. 2013; 18: 1422-1435
        • Gede N.
        • Remenyi Kiss D.
        • Kiss I.
        Colorectal cancer and screening awareness and sources of information in the Hungarian population.
        BMC Fam Pract. 2018; 19: 106
        • Tanaka M.
        • Strong C.
        • Lee S.
        • Juon H.S.
        Influence of information sources on hepatitis B screening behavior and relevant psychosocial factors among Asian immigrants.
        J Immigr Minor Health. 2013; 15: 779-787
        • Geryk L.L.
        • Blalock S.
        • DeVellis R.F.
        • Morella K.
        • Carpenter D.M.
        Associations between patient characteristics and the amount of arthritis medication information patients receive.
        J Health Commun. 2016; 21: 1122-1130
        • Bounsanga J.
        • Voss M.W.
        • Crum A.B.
        • Hung M.
        The association between perceived health status and health information communication channels.
        J Health Commun. 2016; 21: 1148-1152
        • Beernaert K.
        • Haverbeke C.
        • Van Belle S.
        • Deliens L.
        • Cohen J.
        Information needs about palliative care and euthanasia: a survey of patients in different phases of their cancer trajectory.
        Patient Educ Couns. 2018; 101: 132-138
        • Capurro D.
        • Ganzinger M.
        • Perez-Lu J.
        • Knaup P.
        Effectiveness of eHealth interventions and information needs in palliative care: a systematic literature review.
        J Med Internet Res. 2014; 16: e72
        • Meier E.A.
        • Gallegos J.V.
        • Thomas L.P.
        • et al.
        Defining a good death (successful dying): literature review and a call for research and public dialogue.
        Am J Geriatr Psychiatry. 2016; 24: 261-271
        • Haishan H.
        • Hongjuan L.
        • Tieying Z.
        • Xuemei P.
        Preference of Chinese general public and healthcare providers for a good death.
        Nurs Ethics. 2015; 22: 217-227
        • Miyashita M.
        • Kawakami S.
        • Kato D.
        • et al.
        The importance of good death components among cancer patients, the general population, oncologists, and oncology nurses in Japan: patients prefer “fighting against cancer”.
        Support Care Cancer. 2015; 23: 103-110
        • Yun Y.H.
        • Kim K.N.
        • Sim J.A.
        • et al.
        Priorities of a “good death” according to cancer patients, their family caregivers, physicians, and the general population: a nationwide survey.
        Support Care Cancer. 2018; 26: 3479-3488
        • Carolyn E.S.
        • Mazor K.
        • Rogers J.
        • Ma Y.
        • Reed G.
        Validation of a new measure of concept of a good death.
        J Palliat Med. 2004; 6: 575-584
        • Miyashita M.
        • Sanjo M.
        • Morita T.
        • Hirai K.
        • Uchitomi Y.
        Good death in cancer care: a nationwide quantitative study.
        Ann Oncol. 2007; 18: 1090-1097
        • Shin D.W.
        • Choi J.
        • Miyashita M.
        • et al.
        Measuring comprehensive outcomes in palliative care: validation of the Korean version of the Good Death Inventory.
        J Pain Symptom Manage. 2011; 42: 632-642
        • Miyashita M.
        • Morita T.
        • Sato K.
        • et al.
        Factors contributing to evaluation of a good death from the bereaved family member's perspective.
        Psychooncology. 2008; 17: 612-620
        • Cagle J.G.
        • Pek J.
        • Clifford M.
        • Guralnik J.
        • Zimmerman S.
        Correlates of a good death and the impact of hospice involvement: findings from the national survey of households affected by cancer.
        Support Care Cancer. 2015; 23: 809-818
        • Davies A.
        • Todd J.
        • Bailey F.
        • Gregory A.
        • Waghorn M.
        Good concordance between patients and their non-professional carers about factors associated with a 'good death' and other important end-of-life decisions.
        BMJ Support Palliat Care. 2016; 9: 340-345
        • Choi J.Y.
        • Chang Y.J.
        • Song H.Y.
        • Jho H.J.
        • Lee M.K.
        Factors that affect quality of dying and death in terminal cancer patients on inpatient palliative care units: perspectives of bereaved family caregivers.
        J Pain Symptom Manage. 2013; 45: 735-745
        • Ni K.
        • Gong Y.
        • Li F.
        • et al.
        Knowledge and attitudes regarding hospice care among outpatients and family members in two hospitals in China.
        Medicine. 2019; 98: e15230
        • McIlfatrick S.
        • Hasson F.
        • McLaughlin D.
        • et al.
        Public awareness and attitudes toward palliative care in Northern Ireland.
        BMC Palliat Care. 2013; 12: 34
        • Westerlund C.
        • Tishelman C.
        • Benkel I.
        • et al.
        Public awareness of palliative care in Sweden.
        Scand J Public Health. 2018; 46: 478-487
        • Maurer J.
        • Uscher-Pines L.
        • Harris K.M.
        Perceived seriousness of seasonal and A(H1N1) influenzas, attitudes toward vaccination, and vaccine uptake among U.S. adults: does the source of information matter?.
        Prev Med. 2010; 51: 185-187
        • Shin D.W.
        • Cho J.
        • Kim S.Y.
        • et al.
        Discordance among patient preferences, caregiver preferences, and caregiver predictions of patient preferences regarding disclosure of terminal status and end-of-life choices.
        Psychooncology. 2015; 24: 212-219
        • Manu E.
        • Mack-Biggs T.L.
        • Vitale C.A.
        • et al.
        Perceptions and attitudes about hospice and palliative care among community-dwelling older adults.
        Am J Hosp Palliat Care. 2013; 30: 153-161
        • Temel J.S.
        • Greer J.A.
        • Muzikansky A.
        • et al.
        Early palliative care for patients with metastatic non-small-cell lung cancer.
        N Engl J Med. 2010; 363: 733-742
        • Akechi T.
        • Miyashita M.
        • Morita T.
        • et al.
        Good death in elderly adults with cancer in Japan based on perspectives of the general population.
        J Am Geriatr Soc. 2012; 60: 271-276
        • Morita T.
        • Oyama Y.
        • Cheng S.Y.
        • et al.
        Palliative care physicians' attitudes toward patient autonomy and a good death in East Asian countries.
        J Pain Symptom Manage. 2015; 50: 190-199.e1