Eliciting the serious illness-related traditions, beliefs, and values of historically
and currently marginalized populations such as American Indian/Alaska Natives (AI/ANs)
through Community-Based Participatory Research (CBPR) is a crucial initial step towards
developing culturally-responsive interventions. While CBPR is the preferred methodology
for research with AI/AN populations
1
,- Lucero JE
- Emerson AD
- Beurle D
- Roubideaux Y.
The Holding Space: A Guide for Partners in Tribal Research.
Prog Community Health Partnersh. 2020; 14 (PMID:32280127): 101-107https://doi.org/10.1353/cpr.2020.0012
2
, it has rarely been used in palliative care (PC) research
- Wilson J
- Thomson C
- Sabo S
- Edleman A
- Kahn-John M.
Development of an American Indian Diabetes Education Cultural Supplement: A Qualitative
Approach.
Front Public Health. 2022 Feb 8; 10 (PMID:35211438PMCID: PMC8860978)790015https://doi.org/10.3389/fpubh.2022.790015
3
,- Isaacson MJ.
Addressing palliative and end-of-life care needs with Native American elders.
Int J Palliat Nurs. 2018 Apr 2; 24 (PMID:29703114): 160-168https://doi.org/10.12968/ijpn.2018.24.4.160
4
specific to AI/AN spirituality. Moreover, few studies regarding AI/AN spirituality
have included traditional healers’ voices in the research process
- Isaacson MJ
- Duran T
- Johnson G
- Soltoff A
- Jackson S
- Petereit D
- Armstrong K
- Daubman BR.
"Calling the Spirit Back:" Spiritual Needs Among Great Plains American Indians.
J Pain Symptom Manage. 2022 May 23; (S0885-3924(22)00718-7Epub ahead of print. PMID:35618248)https://doi.org/10.1016/j.jpainsymman.2022.05.014
5
,
6
,
- Wilson J
- Sabo S
- Chief C
- Clark H
- Yazzie A
- Nahee J
- Leischow S
- Nez Henderson P.
Diné (Navajo) Healer Perspectives on Commercial Tobacco Use in Ceremonial Settings:
An Oral Story Project to Promote Smoke-Free Life.
Am Indian Alsk Native Ment Health Res. 2019; 26 (PMID:30690702): 63-78https://doi.org/10.5820/aian.2601.2019.63
7
; none were related to PC.- Struthers R
- Eschiti VS.
Being healed by an indigenous traditional healer: sacred healing stories of Native
Americans. Part II.
Complement Ther Clin Pract. 2005 May; 11 (PMID:16028347): 78-86https://doi.org/10.1016/j.ctnm.2004.05.002
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References
- The Holding Space: A Guide for Partners in Tribal Research.Prog Community Health Partnersh. 2020; 14 (PMID:32280127): 101-107https://doi.org/10.1353/cpr.2020.0012
- Development of an American Indian Diabetes Education Cultural Supplement: A Qualitative Approach.Front Public Health. 2022 Feb 8; 10 (PMID:35211438PMCID: PMC8860978)790015https://doi.org/10.3389/fpubh.2022.790015
- Addressing palliative and end-of-life care needs with Native American elders.Int J Palliat Nurs. 2018 Apr 2; 24 (PMID:29703114): 160-168https://doi.org/10.12968/ijpn.2018.24.4.160
- "Calling the Spirit Back:" Spiritual Needs Among Great Plains American Indians.J Pain Symptom Manage. 2022 May 23; (S0885-3924(22)00718-7Epub ahead of print. PMID:35618248)https://doi.org/10.1016/j.jpainsymman.2022.05.014
- "Our culture is medicine": perspectives of Native healers on posttrauma recovery among American Indian and Alaska Native patients.Perm J. 2012; 16 (WinterPMID:22529755PMCID: PMC3327107): 19-27https://doi.org/10.7812/tpp/11-123
- Diné (Navajo) Healer Perspectives on Commercial Tobacco Use in Ceremonial Settings: An Oral Story Project to Promote Smoke-Free Life.Am Indian Alsk Native Ment Health Res. 2019; 26 (PMID:30690702): 63-78https://doi.org/10.5820/aian.2601.2019.63
- Being healed by an indigenous traditional healer: sacred healing stories of Native Americans. Part II.Complement Ther Clin Pract. 2005 May; 11 (PMID:16028347): 78-86https://doi.org/10.1016/j.ctnm.2004.05.002
- Spirituality, quality of life, and end of life among Indigenous peoples: A scoping review.Journal of Transcultural Nursing. 2020; 32: 161-172
Equal Justice Initiative. "Cultural genocide" and Native American children. 2014. Available at: https://eji.org/news/history-racial-injustice-cultural-genocide/. Accessed 17 Aug 2022.
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Article info
Publication history
Accepted:
January 6,
2023
Publication stage
In Press Journal Pre-ProofIdentification
Copyright
© 2023 Published by Elsevier Inc. on behalf of American Academy of Hospice and Palliative Medicine.